Tag Archives: charity news

NORDOF ROBBINS NEWSLETTER FEB 2021

It’s starting to feel a lot more like spring outside, and with the different parts of the UK mapping our way out of lockdown, we’re looking forward to providing more face-to-face music therapy and bringing together our musical communities in person.
“What a gift Hannah’s music was to Levi” – Levi’s story
Levi is five years old, lives with anxiety and has trouble socially interacting. To help with this, he was recommended Nordoff Robbins music therapy.

Sadly, he lost his Grandad shortly before his music therapy started. His Grandad used to play the ukulele and guitar for him, so this was a huge loss musically as well as in every other way.  

He has now been having sessions with music therapist, Hannah, for a year. Here’s what Levi’s mum, Laura has had to say.
We love to hear about how music therapy has helped you or someone you know, or how music has helped you through the past year. If you would like to share your music story with us then please use the button below.
Share your story
On Stage at Home Live! Would your child like to make music with the Clangers? 
We’re back making music with BBC children’s TV show, Clangers, on Wednesday 3 March, 10:00am. The Clangers are a family of loveable, pink, mouse-like creatures who communicate in whistles and live in space on their Little Blue Planet. 

This time we’re putting on a live online (Zoom) music making session for children (under 5) and their parents to sing, clap and move along to, led by our music therapist, Emily, and Tiny and Small Clanger.

If you know someone who would like to join On Stage at Home Live! then sign up below, we’d love to see you there.
Sign up today
Music Making resources available for children
We’ve created brand new, fun, interactive music making video resources for children to be used at home (or school). They are all fully accessible and made specifically for children and young people to make music with our music therapists.

There’s something for everyone with five different activities and 20 videos, including music making, sensory music time, singing and signing, mindful music and Lou’s digital music makers.
Find out more
Got a taste for whisky? Join our virtual whisky tasting evening on 25 March
Join us on Thursday 25 March, 7:15pm for a virtual whisky tasting fundraiser from Seamus Bar, Isle of Skye.

You don’t have to be a whisky expert to join in, it is open for anyone who enjoys the taste or simply wants to experience an evening of whisky tasting.

There’s a lovely line up of whisky (from Glenfiddich to Balvenie) and all proceeds will go towards helping us to provide more music therapy to vulnerable people across the UK.

Tickets are £185 per person and you can book or find out more by contact Lydia.hughes@nordoff-robbins.org.uk
The Legends of Rugby auction is now live!
The long-standing Legends of Rugby event in aid of Nordoff Robbins, which sees the world of rugby and music come together in a celebration of one of England’s Rugby heroes, will take place virtually on Friday 26 February 2021.

To run alongside the event, they are running a virtual auction with some really cool prizes. 
So, if you fancy getting your hands on a Ronnie Wood or Jimi Hendrix print, sports memorabilia, hospitality sports packages or even a Michelin star meal then check out the Legends of Rugby auction today.
Check out the auction here
Specsavers Scottish Music Awards 2020 shortlisted at the Digital Awards
We’re thrilled to be shortlisted for the Best Digital Fundraising Event at this year’s Digital Awards.

The virtual ceremony saw some of Scotland’s biggest stars come together and raised over £90,000 to help us to carry on providing music therapy in the middle of the pandemic.

Don’t worry if you missed it, they’ll be a very special edition coming out soon, so keep your eyes peeled as we’ll be sharing more in the March newsletter.
Ways Nordoff Robbins can help you
At Nordoff Robbins we want to bring musical value to your life. The power of music has never been more important than during lockdown, where many of us find ourselves isolated from friends and family. Below are musical resources for you, your family or friends which are fully inclusive and accessible to all.  On Stage at Home Live! – Join us and the Clangers live on Wednesday 3 March, 10:00 am for a live online music making session for preschool children. Sign up here today, there are only limited spaces available.Music Making – Brand new musical resources for children to use at home. Fully inclusive and accessible, there are over 20 interactive music making sessions available. Find out more here.Inclusive online choir – Our inclusive online choir runs every Tuesday from 4pm and is suitable for people of all ages and abilities. If you’d like to find out more or get involved click here. Singalongs – Singing is an essential means of staying well, of promoting social bonds and strengthening communities. Our music therapists have created a suite of singalong packages to suit people of all ages and abilities. Click here to view our Singalong packages.Musical Conversations – Musical Conversations give you the opportunity to talk about music with one of our music therapists – who are all musicians and understand the importance of music in everyday life. Find out more here.
Ways you can help Nordoff Robbins
As a charity we receive no government funding, so we rely on the generosity and support of people like you, our supporters. Fund music for others – you can make a one-off donation or become a regular giver to Nordoff Robbins here.Share your music therapy stories – We would love to hear your stories of how music therapy has helped you or a somebody you know. You can share your story here.Spread the word – We would love you to share our news with your friends and family and encourage them to sign up to our newsletter.
Kind regards,
The Nordoff Robbins team

February update from Make-A-Wish

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As we move into March, we’re bringing you some heart-warming stories that are guaranteed to brighten up your day! From Tiara’s wish for a bedroom makeover to the re-starting of wish visits, 2021 is already filling us with positivity!

Tiara’s Princess Bedroom Makeover

Four-year-old Tiara, from Llanelli in Wales, has never had her own room before.

Tiara was diagnosed with Marfan syndrome and so for her safety, her family all share one bedroom. But a princess needs her space and somewhere to hang all those dresses.

With the help of Kinderoo Childrens Interior, Make-A-Wish UK had the pleasure of granting her unique wish – ‘to have a princess bedroom makeover’.Read Tiara’s story

How We Talk About Cancer

Amelia, 19, wishes to give a TEDx talk about the language we use when talking about a cancer diagnosis. In particular, the words ‘fighting’ and ‘battle’.

On #WorldCancerDay (4th February 2021), we invited her to lead the conversation over on our Instagram account.  She also wrote a guest blog post, which explains how her diagnosis influenced her choice of wish. Read Amelia’s guest blogCatch up with the Instagram Takeover

Good News!

Coronavirus stopped wish visits in their tracks last March, leaving nearly 100 seriously ill children waiting to discuss their once in a lifetime wish. But we’re pleased to announce that our volunteer Wish Visitors can now carry out those visits safely again – via video call. 

Lynn is just one of those volunteers. Thanks to her support, other children whose wishes are waiting will now start moving along their wish journey.

Charlie’s Superhero sprints raise over £700!

To help grant wishes, Charlie (5) is running 500m everyday in February, dressed as a different superhero. Soaring above his target of £500, he is already up to an amazing £790. 

We’d like to thank Charlie for being committed to helping other children. He’s the best kind of superhero, a #WishHero!Check out his costumes

Are you looking to challenge yourself?

You can join us on 31st May 2021 for the capital’s most inspiring 10km; Vitality London 10,000.

On the day, it will be socially distanced and you’ll be helping to grant life-changing wishes for children with critical illnesses.

What are you waiting for? Learn more

News – Children with Cancer UK newsletter

Raj was two and a half years old when he was diagnosed with a brain tumour. Over five years later, after enduring six operations, chemotherapy, proton beam therapy and immunotherapy, his mum, Suki was told Raj had three months left to live.

“Raj was oblivious. He was happy and smiling. The last few months were tough but we made some beautiful memories. On April 20th 2018, my beautiful baby boy died in my arms at home. I am so very proud of Raj. I miss him so much and life will always be empty without him. My only hopes are we find a cure someday so no other family has to face this reality. A cure really can’t wait.” Suki, Raj’s mum, February 2019.

Raj’s mum Suki tells their story here

Brain tumours kill more children than any other cancer. We’re working hard to raise awareness of this and, with your help, fund vital research to develop better treatments.

An announcement from our CEO, Dhivya O’Connor, confirms the need for research into the treatment of brain tumours and has pledged a further £1 million towards it.

Brain Tumour Research

When a child is diagnosed with a brain tumour, each family’s journey is different. Blake was given three weeks to live. Four years on, mum Llian tells their story.

Listen to her five short podcasts as she tells their story.

March is National Essential Tremor Awareness Month

Having being diagnosed with a tremor a few years ago in both my hands, it is good to see the National Tremor Foundation (NTF) raising awareness of the various tremors and how they can affect people in their everyday lives. My tremors do show themselves more when stressed or for a period of minutes/hours, before normalizing. Do contact the charity for more information and/or advice.

ntf

The aim of the National Essential Tremor Awareness (NETA) month is to raise awareness of essential tremor by holding a series of events across the UK, including the National Tremor Foundation’s main event, Essential Tremor Awareness Day, at Holiday Inn, Sutton on 9 March.

Essential tremor is considered one of the most common neurological movement disorders and is estimated to be eight to 10 times more prevalent than Parkinson’s disease.  People exhibit a rhythmic trembling of the hands, head, legs, trunk and/or voice. It can afflict persons of any age, gender and race and in the vast majority of all cases it is inherited.  While more commonly noticed in older individuals, essential tremor can begin as early as birth.

National Essential Tremor Awareness month, was started by the International Essential Tremor Foundation (IETF), in the USA to raise awareness of essential tremor and has since been growing internationally from strength to strength.

Kevin Harfoot, NTF Chairman, said: “Over the last few years we have seen NETA month increasing in activity, particularly with the development of a stronger support group network in the UK. It’s great to see people getting together and raising awareness of essential tremor.”

We look forward to hearing more from the NTF and NETA month this March.

#Tremor2019

Follow the latest NETA month updates on Twitter #Tremor2019.

NETA 2019 events

Please note: contact each event specific organiser in case of change of details.

North West Tremor Support Group Meet-Up

6 March 2019 13:00 – 14:00
Linear Hotel, Lord Nelson Street, Liverpool L3 5QB
Contact: Tom and Joan Reader 0151 4753252

Southampton Shakers Meet-up (informal meeting)

8 March 2019 13:30 – 15:00Haskins Garden Centre West End (look for green spiral on table), Mansbridge Rd, West End, Southampton SO18 3HW
Contact: jackie@tremor.org.uk

Essential Tremor Awareness Day

9 March 2019 12:00 – 17:00
Orchard Suites, Holiday Inn, Gibson Road, Sutton SM1 2RF
Contact: jackie@tremor.org.uk

Salisbury Shakers

9 March 2019 10:30
Please note there has been a change of venue. New venue details:
Salisbury Playhouse, Malthouse Lane, Salisbury SP2 7RA
Contact: salisburyshakers@btinternet.com

Nuneaton Tremor Awareness Meet-up

10 March 2019 15:00 – 17:00
URC church 2 Chapel St, Nuneaton CV11 5QH
Contact: nuneaton@tremor.org.uk

Nuneaton Shaking and Dining

10 March 2019 17:15 – 19:15
Attleborough Arms, Highfield Road, Nuneaton, CV11 4PL
Contact: nuneaton@tremor.org.uk

Essential Tremor in Children Support Day

10 Mar 2019 11:00 – 15:30
Glacier Suite, IceSheffield, Coleridge Road, Sheffield, S9 5DA
Contact: kitty@tremor.org.uk

Queen Elizabeth Foundation Carshalton (NTF Information Table)

14 March 2019 10:00 – 15:00
QEF Mobility Services, 1 Metcalfe Ave, Carshalton SM5 4AN
Contact: jackie@tremor.org.uk

ET Awareness Day in Canterbury

23 March 2019 13:00 – 16:30
Age UK, Castle Row, Canterbury, Kent, CT1 2QY
Contact: jackie@tremor.org.uk

Leeds Awareness Meet-up

23 March 2019 13:00 – 16:00
Leeds Marriott Hotel, 4 Trevelyan Square, Boar Ln, Leeds LS1 6ET
Contact: lands@tremor.org.uk

Find out more about NTF events.

FIFTY GIGS IN A DAY 2019 IS THIS FRIDAY 8 FEBRUARY

Fifty Gigs In A Day 2019 is this Friday (although there have been gigs already from Space Elevator & Hanson Asiedu). Those with gigs this Friday are –


ADRIAN BELEW,
 PAUL CARRACKJARROD DICKENSONBARBARA DICKSONDODGY FAIRPORT CONVENTIONFMFROST*FUN LOVIN’ CRIMINALS

STEVE HACKETTKAISER CHIEFSKING KINGLETZ ZEPLOST VOICE GUYTHE SMYTHSSTONE BROKENTHOSE DAMN CROWSTHUNDER 

YESTHE YOUNG ‘UNS

Plus the Little Red Kings, Broken Witt Rebels, the Fierce & the Dead and Andrew W.K. will be joining in even though they are not currently touring.

All will be mentioning the work of Nordoff Robbins via their social media on Feb 8th

In addition there are some gigs taking place specifically plugging the work of Nordoff Robbins on stage and/or raising funds for them –

Folk night at the Railway Inn, Portslade tomorrow night (7 Feb) – thanks to Robb Johnson

Dandelion Charm are playing a gig at the Brunswick, Hove on Feb 8th. It is free entry and any donations on the night will go to Nordoff Robbins.

Folk duo Ninebarrow play North Ferriby Village Hall

Author Mark Stay has a signing event for his new book ‘The End of Magic’ and he will donate £1 for each copy sold and/or signed on the night (15 Feb)

Latest updates can be found here –

https://50gigsinaday.home.blog/

PS

Just Giving page is below if you’d kindly like to donate and support the work of Nordoff Robbins

https://www.justgiving.com/fundraising/fiftygigsinaday2019

Today is World Cancer Day

Every day, 12 families in the UK will be given the news
that their child has cancer.

On World Cancer Day,
Blake’s mum is asking for your help.

At just three years old, Blake was diagnosed with a brain tumour. He spent months in intensive care and had 18 months of chemotherapy. Blake has been left paralysed from the chest down and with other ongoing difficulties.

But now nine years old, Blake’s in school, he’s a happy little boy and has been stable for over four years. Let’s hope that continues.

Blake’s mum is asking for your help today – to give £12 for the 12 children diagnosed with cancer today.

    Watch Blake’s video   
Monday 4th February is World Cancer Day, when the world comes together to raise awareness and to take action to reduce the devastating impact that cancer has.

Today, 12 families in the UK will be given the devastating news that their child has cancer. To mark 2019’s World Cancer Day, we hope to raise awareness by shining a spotlight on this shocking statistic. Will you consider donating £12 to support young cancer patients and to keep their families together.

               Please give £12 for the 12 children diagnosed today            
Luke was diagnosed with hepatoblastoma, a very rare cancer when he was just six months old. Luke is now 10 years in remission. Claire tells us their story.Watch Claire and Luke’s video

World Cancer Day – Family Videos

For this year’s World Cancer Day, we asked families affected by childhood cancer to share their stories. They tell us about their journeys and show us why it’s so important to help fund breakthrough research and keep families together.

Charity News – Get involved in National Essential Tremor Awareness Month 2019

Something that not many may know about the wonderful work the National Tremor Foundation do in helping & supporting people and their families with various tremors. I have an essential tremor (a strange name as I could happily do without it!), which affects both my hands. March is National Essential Tremor Awareness Month. Read on for more how you can get involved – it can be as simple as putting up a poster in your local GP surgery to raise awareness.

ntf

March is National Essential Tremor Awareness (NETA) Month, and this year the NTF wants to make it bigger than ever.

Last year was the NTF’s fourth year of raising awareness for NETA Month.  This year we are organising more events including an Essential Tremor Awareness Day on the 9 March in Sutton.

NETA month as it’s called in the USA was started by the IETF to raise awareness of essential tremor and has since been growing from strength to strength.

For NETA 2019 we are looking for more people to support us and raise awareness about essential tremor. This could involve talking to your loved ones about essential tremor to actively fundraising for the NTF.

How you can get involved

1) Run an awareness event

Many people will be running awareness events during March to support others and raise awareness. These are a great way to meet others and share experiences. These are low cost and can be held at a local cafe or a pub. If you are interested in running an awareness event please contact us.

2) Donate

The NTF relies on donations, sponsorship and contributions in order to carry out its work. Why not make a donation, today!

3) Raise awareness

We are always looking for ways to help promote the foundation and raise awareness. Download one of our free posters and social media banners here. Why not print some out and bring them down to your local GP or hospital.

4) Gift aid

If you are a UK taxpayer, you may be eligible for Gift Aid, meaning for every £1 you donate, the NTF will be able to gain another 28p.

5) Do a sports challenge

Why not do something amazing that you have always wanted to do, such as parachuting, whilst raising funds for charity. There are tons of things you could do from running a 5K to scaling Mount Snowdonia!.

6) Ebay

Sell all your unwanted goods and eBay gives you the option to donate all or a proportion of the money to charity.

7) Get in touch your local community group

Contact your local community group and get them involved. This could be your local U3A, church or art group.

Get in touch if you would like to get involved!

News – MAKE-A-WISH There’s #FeelGoodFriday stories in here!

maw

Thirteen-year-old Jack loved to play the piano and saxophone, especially with his Grandad, who had a big influence on him. He was offered a scholarship because of his musical talent but, a week before his thirteenth birthday, Jack was diagnosed with Ewing’s sarcoma, a type of bone cancer.

Read Jack’s story

Jack was told his arm would need to be amputated. Thankfully, pioneering surgery in Austria meant only the damaged part of his arm was removed. Jack can no longer play musical instruments like before, but he’s passionate about composing music! So, he’s turned to us and wishes to own a computer that can help him compose. By sponsoring Jack’s wish today, you can help make his wish a reality!

Sponsor Jack’s wish

Nine-year-old Luke’s good deed

We can’t help children like Jack without the help of our supporters.  Last week we received a very heart-warming letter from nine-year-old Luke who did his own good deed to help seriously ill children. Read his inspirational letter here.

Luke’s letter

“I wish to own a hot tub”

Nine-year-old Ty is living with Duchenne muscular dystrophy, a condition causing his muscles to get progressively weaker. Ty’s wish  was the 100th hot tub wish granted in collaboration with the Hot Tub Warehouse! Click here to read all about Ty’s wish and how it’ll make a difference to his life.

National Deaf Children’s Society news

ndcs

Our event at Parliament in 2018. We took families and deaf young people to talk to MPs about tackling the funding crisis in deaf education.

Thanks for making a difference to deaf children

We value your opinions and always try to act on the information you give us – whether that’s through our membership survey, one of our polls, or an evaluation of an event.

Your views make a real difference – here’s how:

You put pressure on the Government

In October, thanks to you answering some quick questions about your child’s audiology service, we made a brilliant piece with Channel 5 News. This highlighted what you think the biggest problems are, and what the Government needs to do to improve them.

You fought for deaf children’s rights

In November, we asked you about cuts to deaf education. Your incredible response made Channel 4 News, The Guardian and Times Educational Supplement. We took your answers to the Minister responsible and argued for more money for deaf children’s education.

You kept us on track

In our 2018 membership survey you told us what matters to your family and how you think support for your child can be improved. We’re focusing our efforts on what’s important to you – including fighting for better services, campaigning for local authorities to provide radio aids and planning for a careers campaign.

Look out for our 2019 membership survey, which launches on 6 February. It’s another chance to set the agenda – so please don’t stop sharing your views.

Stolen Moments campaign launches

sm

We can’t give back the stolen moments, but you can help us catch the thief

Almost two decades are stolen from a woman who dies of ovarian cancer in the UK. Years of missed anniversaries, birthdays, weddings and graduations. The countless hugs and cups of tea.

Symptoms such as bloating, loss of appetite, needing to wee more frequently and stomach pain present when cancer has advanced and a woman’s chance of survival has already dropped. We want to catch ovarian cancer in its earliest stages, ideally before it even develops. There is currently no screening tool for ovarian cancer and we want to change this.

Prevention is better than cure

When a woman is diagnosed with ovarian cancer, the odds are stacked against her. Recurrence is high and survival rates are poor. No woman deserves to live in fear of either.

http://www.ovarian.org.uk/stolen-moments/